Hi-great to get your feedback. Sounds like your in about the same boat as me. I just talked to the oncologist today as I had MRI done last week. It does not show any lesions-just osteo. So I am thankful for that. At first he said if my IGG got over 3000 I would need treatment. That happened about a year and half ago. So he consulted with a doctor at the Mayo clinic-and the Mayo doctor told him since I am doing well clinically (I feel good-some anemia, kidneys are good, etc. ) that he wants to hold off any treatment. So -that is where I am at. It is nerve racking-I agree-especially if a new symptom pops up and you think-is this something I should tell my doc or not. But-since I feel pretty good-I am thankful. I cope by trying to stay positive and look at how well I am doing. This is so nice-being able to talk back and forth with someone who can understand and is going thru similar problem. Let's keep in touch . I had the once a year med for the bones-IV-can't think of the name right off hand. Thanks for your reply.

Hello Connie, yes I’m also testing every3 month. Haven’t tracked numbers lately ……but also in “smoldering Myeloma” now. Am retired, but have had yearly blood tests for Mgus for over 30 years….#s went up so now every3 months (for about 1 & 1/2 years) no MM specific symptoms yet……So Connie if you want to share/compare info, I would like to keep in touch. I’m new to this site, not sure of it yet. Take care, Anne