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DiscussionStiff Person Syndrome: Want to connect with others
Brain & Nervous System | Last Active: 4 days ago | Replies (197)Comment receiving replies
Does anyone know what my path moving forward is going to be? Im going to do infusion and a muscle relaxer. My doctor has never treated this. So I feel Im on my own. Thanks
Replies to "Does anyone know what my path moving forward is going to be? Im going to do..."
@suzieflynn here is another website that may help you. Stay strong
https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome
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Good morning and welcome to Connect..Here is a discussion group about Stiff Person Syndrome (SPS). What is the infusion that you will be getting? Is your physician a rheumatologist?
https://connect.mayoclinic.org/discussion/stiff-person-syndrome/?pg=7#comment-388249I, too, felt alone when I got my diagnosis because no one in my town had even heard of it. My brother in law, a toxicologist, sent me an article from a neurological journal that I made copies of and gave to doctors. Never hurts to do research and be your own advocate. I’m sitting here now, getting my infusion of rituxan, my wonder drug!