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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
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@suzieflynn

Does anyone know what my path moving forward is going to be? Im going to do infusion and a muscle relaxer. My doctor has never treated this. So I feel Im on my own. Thanks

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Replies to "Does anyone know what my path moving forward is going to be? Im going to do..."
Becky, Volunteer Mentor | @becsbuddy | Jul 10, 2020

Good morning and welcome to Connect..Here is a discussion group about Stiff Person Syndrome (SPS). What is the infusion that you will be getting? Is your physician a rheumatologist?
I, too, felt alone when I got my diagnosis because no one in my town had even heard of it. My brother in law, a toxicologist, sent me an article from a neurological journal that I made copies of and gave to doctors. Never hurts to do research and be your own advocate. I’m sitting here now, getting my infusion of rituxan, my wonder drug!
https://connect.mayoclinic.org/discussion/stiff-person-syndrome/?pg=7#comment-388249

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Becky, Volunteer Mentor | @becsbuddy | Jul 10, 2020

@suzieflynn here is another website that may help you. Stay strong
https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome

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