← Return to Stiff Person Syndrome: Want to connect with others

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@becsbuddy

Good morning and welcome to Connect..Here is a discussion group about Stiff Person Syndrome (SPS). What is the infusion that you will be getting? Is your physician a rheumatologist?
I, too, felt alone when I got my diagnosis because no one in my town had even heard of it. My brother in law, a toxicologist, sent me an article from a neurological journal that I made copies of and gave to doctors. Never hurts to do research and be your own advocate. I’m sitting here now, getting my infusion of rituxan, my wonder drug!

https://connect.mayoclinic.org/discussion/stiff-person-syndrome/?pg=7#comment-388249

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Replies to "Good morning and welcome to Connect..Here is a discussion group about Stiff Person Syndrome (SPS). What..."

Thank you so much The infusion won’t start until at least next week because they have to have a pre-authorization from my insurance so I just don’t know what to expect did you lose your eyesight in my left eye or movement