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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Apr 27 2:40pm | Replies (197)
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@michellewi

Hello @peggi
I am from Wisconsin also diagnosed with SPS in 2012 and I am getting progressively worse. I currently go to SSM Health. Would you be willing to share who your doctor is at UW? My insurance covers both. I am looking for a specialist not just a neurologist. Thank you, Michelle

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Replies to "Hello @peggi I am from Wisconsin also diagnosed with SPS in 2012 and I am getting..."
Colleen Young, Connect Director | @colleenyoung | Apr 19, 2020

Hi @michellewi and welcome to Mayo Clinic Connect. I see that you've been living with Stiff Person Syndrome since 2012. I'd like to bring in fellow members @peggi @hsmith801 @suzanneleafbrock @speechless623 @njgenevieve and @aknitag into the discussion. Peggy and Suzanne may be able to suggest SPS specialists in the Wisconsin area.

Michelle, you mentioned trouble walking. What are you able to do to maintain mobility?

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suzieflynn | @suzieflynn | Jul 10, 2020

I’m looking as well

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