Hello. My husband has stiff person syndrome and tried numerous treatments. It does seem to be a trial and error for various options. Back spasms, tiredness, some gait issues are/were all issues. He also has experienced startle response issues that would cause spasms. Baclofin did not help him. He tried plasma exchange and after the first two, that was discontinued because he did not respond. Keeping his back really warm and sleeping a lot are two things that seem to help him that are non-prescription based. He also is an advocate of stretching exercises. I hope this helps and all the best to you.

I had my appointment with the neurologist at UW on Thursday, and she increased my IVIg to every 6 weeks. Hopefully there will not be another shortage.

No: My only symptom is loss of balance especially when walking outdoors: slants, curbs, gravel. I can walk 3 miles in 45 minutes with the use of walking sticks though. No pain. No startle reflex. If I stop to chat with someone, though, I am really stiff until. I walk a few steps though. Oh! And being cold really causes me to stiffen up. I feel like a statue.