← Return to Stiff Person Syndrome: Want to connect with others

Discussion

Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
Comment receiving replies
@pollyanna777

AGAIN, I URGE EVERYONE TO CHECK OUT THE STATS ON "IVIG"! PLEASE LOOK IT UP AND ASK YOUR DOC. IT IS COVERED BY MOST INSURANCE COMPANIES.

Jump to this post

Replies to "AGAIN, I URGE EVERYONE TO CHECK OUT THE STATS ON "IVIG"! PLEASE LOOK IT UP AND..."
Lisa Lucier, Moderator | @lisalucier | Sep 19, 2019

@pollyanna777, I can understand your anger and how you feel the need to "shout it out" by using all caps. Treatment is supposed to help. But when the treatment creates new problems that are toxic and unsafe, we feel betrayed. It sounds like the intravenous immunoglobulin (IVIg) provides you and your friend with new hope and that physiotherapy will be a great addition to help with her mobility.

VIEW AND REPLY