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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
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@lisalucier

Hi, @trs - welcome to Mayo Clinic Connect. The spasms you describe sound almost unbearable. I'm glad you've found some relief.

Was your doctor the one who suggested the medical cannabis, or how did you decide to try that route?

@bryan_in_dallas - what treatment avenues are your rheumatologist having your pursue for SPS?

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Replies to "Hi, @trs - welcome to Mayo Clinic Connect. The spasms you describe sound almost unbearable. I'm..."
trs | @trs | Sep 17, 2019

I am a healthcare professional and in consultation with my pain specialist and primary care doc, it was the only remaining option. Baclofen and other drugs created unsafe side effects and the spasms we're still breaking through. My rheumatologist is no longer involved. She tried everything, except bio-stuff. I am extremely grateful that cannabis is available in my home state of Illinois.

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