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Suzanne Leaf-Brock (@suzanneleafbrock)

Stiff Person Syndrome

Brain & Nervous System | Last Active: Sep 15, 2020 | Replies (112)

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@sarah1000

Hi there Bryan-
I'm sorry to hear about your health issues. SPS is a member of the GAD65 antibody autoimmune disorders.(SPS, Myesthinia Gravis, Sjogren's, CIDP, etc…) Many of these disorders have overlapping symptoms. You also may have more than one disorder. There are tests to figure out which one you have and treatment is different for each. From the sounds of it, you have an autoimmune issue that involves your central nervous system. You need to find an auto immune Neurologist . These will generally be at the major University Hospitals. They will be able to determine what issue you have and treat you for it. I wish you the best!

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Replies to "Hi there Bryan- I'm sorry to hear about your health issues. SPS is a member of..."

Hi, @sarah1000, and welcome to Mayo Clinic Connect. Appreciate your input. Do you also have stiff person syndrome?

@awinkler73 – will you share what other treatment options you and your doctor discussed at your appointment?

Thank you Sarah!