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Suzanne Leaf-Brock (@suzanneleafbrock)

Stiff Person Syndrome

Brain & Nervous System | Last Active: Sep 15, 2020 | Replies (112)

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@awinkler73

I've been on IVIG for 2 years and they have slowed progression to an extent. Have discussed other options at the last appointment.

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Replies to "I've been on IVIG for 2 years and they have slowed progression to an extent. Have..."

The this g you have to remember with this disease is that everyone is different. One treatment may work for me but may not work for you or whoever. The medication is one of the keys. Valium is a common med but it is not a long lasting drug so you end up taking it more often than normal and become addicted. Clonozapam lasts longer so it isn't as dangerous in that aspect. Gabapentin is another along with baclofen. I also take immuran