← Return to Stiff Person Syndrome: Want to connect with others

Discussion
Comment receiving replies
@ndville

Hello. My sister was diagnosed with stiff persons syndrome about 4 years ago at Houston Methodist in Houston Texas, and it is hard to get a physician to help her. She has tremors that last for hours and will only be helped with Valium. I called John Hopkinsin Baltimore to ask for help, they said they would make an appointment to see her, let's hope that works out.. Right now she is trached because she has trouble breathing and they won't see her until she is released from therapy. We live in Louisiana in a rural area so our options are limited. I read on many sites medicinal marijuana helps allot. Praying for everybody with this disease !!

Jump to this post


Replies to "Hello. My sister was diagnosed with stiff persons syndrome about 4 years ago at Houston Methodist..."

Please keep in touch. I hope her symptoms improve so that she can go to Johns Hopkins; and then I hope Johns Hopkins can help. I have seen online that Dr. Eric Newsome actually has an SPS Clinic.