@michaeleta I hope it can be caused by some violent force. It would make me sad to think there was nothing but my Gelsolin and encephalopathy to cause this stuff.

Hello @michaeleta I am not any kind of medical practitioner, but in all the reading I have done the cause of cerebral amyloid angiopathy is not known at this time. I can say I have never read any journal articles saying the cause is blunt force of any kind. Rather it seems the culprit may be the depositing of abnormal amyloid protein.

Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share a previous conversation that you might find helpful on this topic.

-Cerebral Amyloid Angiopathy:
https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/
You will notice that I consolidated your two posts into just this one in this group.

Can you share a little more about your history and if this is a diagnosis or if you are trying to identify based on symptoms?

@michaeleta, not a clue for that reason, unless you had an AA gene from birth, and the injury just activated it. Other than than that, do you have an Amyloidosis gene in your genome? It would seem worth it to find out.

My 71 yr. old daughter has just been diagnosed with Cerebral amyloid angiopathy. Not good news and just searching for some hope!! She has been very sleepy, etc. Can you tell me anything?

Since there is no treatment for it is there anything that can be done to lessen the head aches such as diet, medications, physical activity etc.

I am so sorry to hear this. I was also diagnosed with amyloid angioplasty during a MRI for a brain tumor. Needless to say I was very scared and upset. I went to the Mayo Clinic in Rochester for a second opinion. They were unable to confirm without previous years MRIs and then it might not be definite. My brain tumor was growing resulting with Gamma knife which unfortunately didn't work. I had 2 strokes that resulted in brain surgery in my home town. I was told by several doctors caring for me that the only was to definitely diagnose it was with a postmortem biopsy. I have agreed to donate my brain for research upon my passing so my family will know. We relocated to another city and I have had numerous MRIs that do not indicate possible Amyloid angioplasty. Personally if you haven't done it I would consider a second opinion.

One of my older brother had a stroke this February his Doctor today advised us that he has CAA we are heart broken. We do not know what the future holds for him, he does not understand the depth of his illness. We need help, can you help us?