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Renal Cyst: Nothing to worry about?

Kidney & Bladder | Last Active: Feb 11, 2019 | Replies (22)

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@samuellandon

Hi, I'm new here, this is my first contact.

I'm not sure where to begin or how much to divulge at first. The short of it is that I have a very persistent, very productive renal cyst, left kidney upper pole, anterior. I have complained of abdominal pain for twelve years, the last two I have been very ill and in pain. The only relief is when I get the cyst drained which has occurred four times, one of those was laproscopic surgery to remove the cyst membrane...but, it came right back. Since that surgery I have been told there is nothing else to be done. The last two times that it has been drained I opted for local anesthetic and the moment the pressure is relieved, I am relieved, and the symptoms subside.....then it gradually reasserts its dominance over my life in the form of lethargy, pain, shakiness, nausea...the works.

Am I in the right place to ask questions and try to get some help?

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Replies to "Hi, I'm new here, this is my first contact. I'm not sure where to begin or..."

Hello @samuellandon and welcome to Mayo Clinic Connect. I understand you are interested in getting help and answers. Connect is a community made up of members like you going through a variety of healthcare situations and experiences who are looking for support and supporting one another. We are not providers but do offer support to one another.

Can you share what your main questions are for which you are looking for answers so members can best provide support?

Well, I'm determined to not live on pain meds.... My insurance doesn't appear to cover any more options, and I'm getting passed around urologists like a bag of money at a party. And, to not be too harsh, I don't feel like I'm being taken seriously when I ask about alternatives to the only surgery that appears to be available in my impoverished location, that has been performed and has failed to relieve the problem as the cyst has re-emerged in the exact location with the exact symptoms as before.

So, I am asking, "Are more options available?"

What I would like, is to have a doctor that believes me when I report serious pain and sickness and that the cyst IS the culprit. And, then explores what, if any, remedies exist seriously.

@samuellandon, how did your appointment go with the new specialist? What options will you be exploring?