@dsstevens I hope you will take time to go back to the beginning of this Gastroparesis conversation and read all of the replies. I did the 6th reply to the original post And listed 11 things that got me to where I am today.
I’m so sorry your 20 year old daughter is dealing with this. You’re right — it’s tough to live with but you can get to the point where it is quite manageable.
From your post, I want to ask a really gross question. Does she ever have severe stomach cramps with diarrhea and vomiting simultaneously? I did. And the surgeon who was scheduled to do a Nissan fundiplication procedure pinpointed the problem.

@dsstevens

I understand your concerns. I have had gastroparesis.... my relief has been a fix for a hiatal hernia, a gastric by-pass. I still have some symptoms of it or they are the same as other problems I have. I now have Barrett's esophagus and achalasia.. a swallowing problem.

This article from the Mayo Clinic has suggestions in diet and life style. https://www.mayoclinic.org/diseases-conditions/gastroparesis/diagnosis-treatment/drc-20355792

There are medications. Many people have success with reglan also called metoclopramide. My doctors say I have too many nerve problems to try it. Some have success with erythromycin, but my doctors have never mentioned it to me. The last one is domperidone. I did try it and had many side effects... I don't have my list handy and it is hard for me to remember back to 2013. I got the prescription filled at a compounding pharmacy. My insurance did not cover it and I only got enough pills for two weeks as a trial. I would suggest that option first before ordering a 3 month supply from pharmacy in Canada. When I was first diagnosed with gastroparesis I took propulsid. It was taken off the market shortly after prescribed.. I took it maybe six months and it helped. There are prescriptions for nausea too and they are mentioned in the article.

I do have a couple of personal suggestions. One is to take a probiotic. It will help balance gut bacteria. I tried several and my husband's cousin suggested that I try Align. It really helps me a lot. It cut down on the bouts of diarrhea. More expensive than some probiotics. I try to stock up on it when Sam's Club puts it on special. Secondly, filtered water. Water seemed to irritate my esophagus and stomach more than coffee... or even spicy foods. My husband put in an under the kitchen sink water filter. Only the cold water is filtered... including line to ice maker. Some people filter the water to everything. It may not help with gastroparesis, but it will help with GERD and also be better on an irritated esophagus from vomiting. One more.. take a chewable vitamin with a meal. It will get into your system a bit better than a capsule.

I have dealt with stomach problems since I was pregnant with my second child in 1972. I worry about his stomach too. He has had problems since he was 14. Wow.. a fast 48 years!!

ZeeGee

MCTD with gastroparesis and constipation

I have suffered with gastroparesis, heartburn, constipation and bowel leakage since I was diagnosed with MCTD 14 years ago. I have been to a gastroenterologist, had endoscopy and colonoscopy, CT scans and tried biofeed back with a Women’s OT. The heartburn is managed with daily medication but the bowel regime is just not helping. Any suggestions?

@1950 i don’t know what MCTD is - but I do have Gastroparesis. Here’s part of what I posted on this thread a while back:
5. After much trial and error, I now eat at least 6 times a day – more like snacks than meals. I eat slowly and chew every thing down to nothing before swallowing.
6. I do not eat FIBROUS foods. (At first I avoided all fiber. But when my doc gave me the go ahead to try adding quick oats and iceberg lettuce to my diet, I started trying more things.)
7. This is my definition of whether or not a food is FIBROUS: If I can chew and chew and it almost turns to liquid in my mouth, it is not FIBROUS and I will eat it. However if I chew and chew and it still there is still texture in my mouth, it is FIBROUS and I do not eat it.
8. I steam the hell out of vegetables so that they melt in my mouth – Brussels sprouts for example. (I love broccoli too but no matter how long I steam it, it remains too fibrous for me to eat.)
9. I take domperidone twice a day. My prescription says to take it 4 times a day but I only take it twice a day. (I call domperidone my illegal drug from Canada!)
10. I take a probiotic twice a day.

I used to have a problem with constipation and took colace twice a day. But since I figured out I can eat foods high in fiber as long as they are not fibrous, that problem stopped.

I used to have a problem with sudden severe stomach pain with simultaneous diarrhea and vomiting. But since my gall bladder was removed, that problem stopped. (I will forever be thankful to the doc who decided to test my gall bladder function! Usually test results of 35 or greater indicate normal function. But my result of 93 was crazy high and not normal at all! Gall bladder removed! Life improved!)

Hello,
I feel for you. I'm going through the same thing for years I have been hospitalized, multiple surgeries on my stomach and colon with no answers.
I was diagnosed 2 weeks ago.
I do exactly the same things as you. I vomit after every meal and my food just sits on my stomach and ferments, then I get extremely nauseas.
I had a gastric emptying study by they couldn't complete it bc I threw up the oatmeal.
I have had 15 colonoscopies, 8 endoscopies all in the last 2 years.
I'm am being sent to the Mayo clinic to see what they can do.
Please reply back to me..
Thanks

That's very good advice. Should I even go to the Mayo clinic? Is it a waste of time?

Domperidone has too many side effects, warnings and interactions with other drugs for me to be comfortable taking it - arrhythmias specifically.

@pdilly @1950 @fourof5zs ... When the local GI doc told me about that drug (Domperidone) that was not FDA approved, I first called a friend who was a radiologist in Sweden.. she said, "don't take that"... so I asked my Primary Care Physician to refer me to Mayo MN... That was a life changing day in my life.. 6 years ago and now doing pretty good even though I am 84..
"Domperidone has been banned in the United States for years because of fatal cardiac arrhythmias among cancer patients who had been prescribed the drug to prevent nausea and vomiting. ... "Unfortunately the different uses of the medication have been tied into the one outcome - fatal cardiac arrhythmia." Nov 11, 2014..
https://www.mayoclinic.org/drugs-supplements/domperidone-oral-route/side-effects/drg-20063481.

I am an RN and have been trying to self diagnose and treat my abdominal bloating, nausea and discomfort for months. Eating small, low fiber meals frequently and Zofran as needed. I recently failed a gastric emptying study which indicated gastroparesis. Colonoscopy yesterday was clean. I am still uncomfortable after eating small amounts of food but gaining weight as my activity level has decreased due to fatigue. Iam not diabetic. I have a SIBO test to complete this week but Iam getting so frustrated and feeling like I’m pregnant every day due to distention. I am 61 years old and my kids are grown.
I did have a serious event with Solanine/nightshade poisoning from a Chinese Lantern plant and ended up unconscious and awakened while in a CT scanner after paramedics brought
Me to local ED. Could there be some correlation between this ? I did see a naturopath after the poisoning event and she said the poison could remain in intestines for years to come… I did have a colonic or washing of the colon after the event but what about my small intestinal tract ?
Just working on trying to feel like myself again as I am a busy RN and want to continue working.
Any and all thoughts are appreciated.

motegrity works sometimes for me