Hi, @edijoke Welcome to Connect. You have been going through this pain for quite a while. That's amazing that it has yet to be diagnosed. Your mention of abdominal migraine caught my eye, I believe my son had them when he was pre-puberty -- typically if a child gets them pre-puberty they often do not get migraines after puberty.
I wish I could say something to help you but your situation is extremely complex. I just wanted to welcome you and to hope that you do get responses from someone who may have something or have had something similar. It sounds as if you have gone to the best possible places trying to find a diagnosis, you must be very frustrated. Hopefully, you will find that one doctor at some top-level hospital, preferably a teaching hospital, who will finally figure out what the problem is. Mayo is ranked #1 but there could be a doctor at one of the other top-ranked hospitals who would see something that a prior doctor did not.
I know the frustration of not being diagnosed, but thankfully I only dealt with it for about a year and a half.
JK

@edijoke - I’m so sorry that you have to suffer like this at your age. I have been through years of abdominal pain since my 40s- pain that at times would numb my brain. At that time I only knew about gallbladder pain and postop clogged bile ducts as well as some possible pancreatitis pain. About that time I also was diagnosed with GERD. So far I knew triggers etc. Later on my pain and general well being changed.
I don’t think you mentioned if your pain in any way is associated with eating. Also, does the pain radiate to other areas? Any GYN problems?

A section of your bowel may be pressing on a nerve. I have bloating and pain in that area, too. My doctor thinks perhaps my problem with the gut might be causing liver inflamation which can also put pressure on a nerve in that area. Another doctor years ago thought my IBS irritations were putting pressure on a nerve causing nerve irritation as far up as burning in my neck when when the IBS kicks in.

I have had somewhat similar symptoms since January 2014. Had countless tests, from numerous CT's, Ultrasounds, MRIE, EGD, 3-colonoscopies, etc.. It has been so frustrating and somewhat depressing because it has affected my life tremendously. I am 61 years old and feel like I will never get to the bottom of it. I live in Tucson Arizona and have to admit that Northwest Medical Center has not been very good at any kind of diagnosis. Nearly all their employees and internal services are sub contracted out to include radiology. In February 2019 I went to ER with the pain pretty bad on my right side abdomen once again where it always has been for the most part and had yet another abdominal CT Scan and this time they flagged mild ascending colon wall thickening. I thought this would be the smoking gun and someone would come up with a diagnosis. They had me see a sub contracted gastologist who sent me for an abdominal ultrasound and a gallbladder ultrasound and then performed another colonoscopy at Northwest Medical Center and he said all was good in the report, follow up in 5 years. Took no biopsies in the area of the wall thickening. In fact no samples anywhere. It was more like a screening and not a diagnostic colonoscopy. I went and saw him once after the fact in April 2019 and he claimed he saw no wall thickening on the CT Scan. I had the Hospital Review the Radiology Findings and they claimed they stood behind their findings. I got no where with them or the gastrologist. It has been a frustrating 6 years of lots of tests and labs, etc., but no diagnosis, yet the problem just slowly progresses. At times the pain will radiate to my groin area, back, shoulder blade, arm and down my arm, but the only finding so far is ascending colon wall thickening, or should I say disputed finding. I have lost faith in the medical system and Have come to believe it is all about money and not helping the patient for the most part anymore. All these Hospitals and Medical Centers are getting bought up by Medical Investment companies and sub contracting all their internal services out which has appeared to hurt the system tremendously.

@edijoke - I’m checking back on your attempts to get a diagnosis. Did you get a chance to ask doctors specifically about tests that evaluate your abdominal blood supply? I think I mentioned the Doppler ultrasound and CT angiogram.

@ger1986 - Welcome to Connect! I really understand what you have been going through- abdominal pain and no diagnosis after so many tests and procedures. Good that you found this discussion with other members with similar problems.
I had mentioned in conversations with other members that it can be useful to evaluate the abdominal blood supply. There could be pressure on an artery or other abnormality that could cause pain.
The common test to evaluate this is an abdominal Doppler ultrasound. You did have ultrasound done, but did you also have the Doppler for the blood flow?

Hi @ger1986,

I’m so sorry to hear about the pain that you are experiencing–@astaingegerdm mentioned,, you’ve come to the right place to talk with people who’ve had similar experiences with health and to get support from members who understand what you are going through.

I also thought you might be interested in viewing this video, on the Gastroenterology & GI Surgery Page where Dr. Amy Oxentenko talks about complexities of chronic abdominal wall pain: https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/chronic-abdominal-wall-pain/

Hi there. Just found this blog hoping for some help here. My husband had Lyme back in April and was violently throwing up bile along with classic Lyme symptoms. He was perfectly healthy before then as far as his digestion goes. Since then, we've been to the ER 3 times with wicked center stomach pain, dizzy, feeling like something in his throat and dripping down his esophagus. Each time, they check his troponin levels and cleared for a cardiac event. His primary ordered CT scan and saw an "abnormality" sending him to a cardiologist, who pointed out a blockage in his stomach, so to the GI dr we go, then to a gallbladder surgeon who didn't think he was bad enough to do surgery with 2 little gallstones and a little polyp on the tip of his gallbladder. He suggested a vascular surgeon. He's had echocardiograms, numerous chest xrays, CT scans, ultrasounds with and without, hydascan, stress test...every dr says he's a mystery. The vascular dr says 70% blockage isn't enough to stent him because the SMA and LMA should compensate for the blockage in his celiac artery. He's waiting to see what the cardiologist has to say before he does the exploratory inside ultrasound with contrast, I believe it's the Doppler I've read about above. He's been put on 81mg aspirin again, and handfuls of antacids for Gurd, but nothing touches it. This week he's felt like crap 3 days. No answers, been doing this since April, so frustrating! My urologist has a lot of trust in MAYO clinic as he studied there, so I'm reaching out on this matter to try to get any information of anything else we can do. Then there's the dizziness. His carotid arteries are fine. A neurologist next stop maybe?? We've even seen infectious disease dr at UMass who denies this being tied to Lyme, as I've been told and have read that they generally do not believe in chronic Lyme affecting the GI tract. So maybe a Lyme literate doctor? That's all out of pocket! Please, suggestions and thoughts are welcome!

@bevgould328
Welcome to Mayo Clinic Connect!
I’m so sorry for your husband- feeling so sick and no tests giving a clear answer.
I assume the celiac artery blockage was found on a CT scan?
I recognize the symptoms because I have been treated for MALS and have needed stenting of the celiac artery twice.
The initial stent was placed because the artery was kinked. The second time the first stent got kinked too. Before the second stent I had awful symptoms- GERD, pain after eating, nausea, feeling full and lack of appetite.
The Doppler ultrasound your husband will have should also show celiac artery blockage.
I’m aware that other abdominal arteries will compensate and I’m sure it happened in my case too, but not enough. If he has 70% blockage with severe symptoms a stent probably will help.
I just had a follow up ultrasound at my vascular surgeon’s office- it showed 50% blockage, but I don’t have symptoms now. If I do get symptoms like before, the doctor will place another stent.