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Replies to "Hello, I've had stomach pain over the past 8 years that is so severe that I..."
@stevenshep - Welcome to Connect Digestive Disorder! Your pain sounds horrible- I almost know the pain. I had extremely severe abdominal pains for years without diagnosis. I would scream- if I was home. I ended up having insufficient blood supply to my intestines due to a ligament compressing one artery. There are also other causes for limited blood supply to intestines and organs. I would typically get worse a while after eating. I don’t know if you already had a Doppler ultrasound of your abdominal blood flow? Or a CT angiogram of the abdomen? If this path has not been investigated, it may be useful to check with your gastroenterologist.
I feel like I'm stuck though. I've had multiple tests done including a colonoscopy and barium swallow and nothing comes up. Now when I talk to a doctor about it they just tell me its probably ibs and do nothing about it. But no medication has really helped me so it's like trying to solve a problem with no one really willing to actually take the time to help me.
I haven't but that definitely seems like that might be best
Hello @stevenshep and welcome to Mayo Connect.
I am sorry to hear of your severe stomach pain without a clear-cut diagnosis and/or treatment plan. That can be frustrating as well as painful.
Connect has many people with similar problems. There are a lot of rare diagnoses that lead to stomach pain. On Connect we are not qualified to diagnose health problems but I can suggest discussions that you can read where others have found helpful. The first would be the discussion on abdominal wall pain. Here is the link, https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-abdominal-wall-pain/
As you read these posts you might find similarities to those who have posted and this might help you to talk with your doctor about a possible new way to look at your stomach pain.
There are also discussions on Mesenteric Panniculitis. Here is a link to those discussions, https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/
Some of these diagnoses are so rare that even a knowledgeable Gi specialist might not think of them right away. I always encourage members of Connect to seek a second opinion from a multidisciplinary health care institution like a university medical center or a Mayo facility if they cannot find help in their local health care system.
Would you be willing to get a second opinion at this time?