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Migraine: Did botox work for you?

Headache & Migraine | Last Active: Dec 6, 2024 | Replies (116)

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@sundance6

Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What a mistake! Toxins such as Botox don't set well in my body.It has been almost three weeks since my treatment. I have been having the worse headaches than before I started. I have been having severe nick and shoulder pain. I get very lathargic and depressed because I have them all the time. Doctor said it just happens.Can someone give me some feedback as to if they have had the treatment and any side effects you may experienced. I go to bed with a headache and wake up with one.I won't do another treatment!Sundance

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Replies to "Despite some of you saying not to try Botox Therapy for Migranes, I did anyway! What..."

I am new at this and have posted my problem with Botox a few times but not sure how to get back to my post. I had Botox shots last Aug. the first shots across my forehead did not help so the Dr. gave me another batch of Botox shots in 2 weeks, after the 2nd. shots I developed severe pain on the right side of my head where I had fallen from a bike accident, I think the Dr. must have hit a nerve or triggered something, I have had this severe pain for almost a year the MRI or Cat scan don't show anything, have seen 4 neurologists and they haven't helped, they cant figure out why I have this severe pain especially when I cough its excruciating, I am at a point where I just don't know if this will ever go away, please let me know if you have had this kind of experience, I am desperate.
Icart

First thought here is that BOTOX is to be given by a CERTIFIED Neurologist who understands how to give it, when to give it and where to administer it. The patient who is to be given this med must qualify for it by diagnosis, symptoms, length of time, other treatments used to treat the headaches and when the type of migraine was given to the patient. The 30+ shots are given every three months on a schedule per FDA regulations, policy /procedure since you must sign your signature to receive this medication. The usual dosage is around 200 mg divided up between different sites of your forehead, neck, around your head, back of your ears, jaw and trigger points. A diary of symptoms, migraines, hours of sleep, vertigo, other medications taken or treatments are logged and given to the doctor at each MD apt for continued approval of BOTOX administration. As noted previously, the Triptans drugs are also a means to treat Migraines since they are a Step program and can be used in addition to BOTOX for breakthrough headaches.
Newer medications are on the market now to help with these break thru headaches that include injections - you as a patient give to yourself. The manufacturers have special programs that help pay for these programs if you want to participate in them since insurance does not pay for these meds, I recently signed up for one of them since I now have more migraines post COVID. Eloise

Reading all this comments - I would go back to the source of your pain. The exact injury or source of the injury. Have you had any adjustments to you neck or spine - could it be out of place, causing your headaches? Have your had any massages, or chiropractic adjustments to your cervical spine? This may be a reason for your repeated headaches. Do you have allergies, sinus difficulties, or had headaches post COVID virus that never went away? The SARS virus attacks the brain and causes headaches, respiratory symptoms long-term and will get in the way of diagnoses and treatment plans. Check your calendar for the start of symptoms, what was done, if it helped, what did not work and chart out a diary for your migraine history to help yourself and your physicians figure out how to care for you. It is becoming more difficult these days to detect the COVID virus because it is now blending itself into and with the other viruses so that all of their symptoms are hard to find and treat. We must be detectives and monitor our bodies symptoms - what we are exposed to, what we eat, how we react to stimuli, what we do to protect ourselves and what means we use to inhibit our symptoms from getting out of control. It is a fighting battle I would agree, but one that can be managed in ways that decrease your migraines and still give you a life that is half way decent. Eloise

Thank you so much for your suggestion, I have tried ice, this pain is not from an injury, I had the accident in 2018 and was told the headache would go away in a year and it did, it is when I got the Botox shots in August 2021 that the shot must have triggered a nerve ending or something like that and now I am experiencing severe pain especially when I cough.
Icart

Have you had a chest xray? Seems like you have to figure out how to avoid the cough. Suck on lozenges until you can figure out this. Did you have a brain MRI?
Mikayla

I don't have a headache, I have a severe pain in my head when I cough from the Botox shot administered in the area on my forehead where I fell on my head in 2018, when the Dr. put the shot in my forehead it triggered a nerve we think. I have migraine headaches, this is besides this pain in my head, this pain is not treated as a headache.
Icart

Ice!

I agree on botox. 1 treatment put me in immediate overnight hospital observation because they thought I had a stroke. One side of face wouldn't move. I had other side effects but cant remember them. (Memory problem mainly due to other medical issues) Of course 5 doctors said it couldn't be the result of botox. Even thought they didn't know what caused it. Lol
Also physicians who gave me the treatment said they never had it happen before.
I am fortunate as my face returned to normal in 2 months.

My mother had over 50 treatment by a few Dr's. She stopped after almost dying. Seriously. She needed help to move, swallow, etc.

I was lucky, both treatments had no effects except blood dripping down my forehead. Didn't help the headache. I am so sorry you had all these problems.
Mikayla

My adult daughter is considered in the top 2% of horrible migraine patients. She has been medicated like crazy, spent $10,000 (not insurance covered) on surgery and then tried the botox with very little other meds. This has been a game changer for her. She is thrilled! She still has mild migraines but not debilitating as they were before. I only posted this because like all treatments, sometimes it is horrible and sometimes it is the thing that changes your life for the better.