I didn't even ask about celiac. My sister showed celiac on her lab and then was checked with the EGD and colonoscopy and it was verified. It is hereditary. My mother had horrible GI symptoms. I just do the FODMAP diet as carefully as possible. Today, I checked the list of foods again and saw some culprits that could be troublesome so I'm throwing them out. There is a lot I can eat but a lot I can't. I gave up meat and dairy a long way back and dropped a bunch of weight right away. I now have cut down on sugar which I love love. The outcome is that I have NO stiffness anywhere. Who knew? Andrew Weill MD stated once, "When sugar goes in it heats up and turns into much like brittle, think peanut brittle." I have never forgotten it.

I have gastroparisis and dumping condition. My stomach looks like I am expecting a baby at 72 years of age. I don't digest food like I should. I know how you feel.

Sorry to hear about your condition. Are you getting treatment to help with your symptoms?

@htocco were you able to get a diagnosis for your condition?

Very interested as my symptoms have been near identical.

Sent you an email with some more details. So far I have seen 4 GI specialists, a neurologist, and two primary care physicians. I even had genetic testing. My distention has also been described as functional. After all the tests, diets, and medications there is still no diagnosis. My distention was persistent for about a year. Now, it is aggravated by activity such as walking. Latest direction pertains to exploring dyssynergia. Even though my distention does not have to do with constipation, I had an anorectal manometry test done. The results where somewhat abnormal. May lead to a direction such as being Abdominophrenic Dyssynerigia combined with Pelvic Floor Dyssynergia. I have an upcoming appointment to meet with a physical therapist at Mayo Clinic.

Some information I came across about dyssnergia
https://drossmancare.com/misunderstood-functional-gi-disorders/
Maybe this will help lead your doctor's in a direction.

Hi htocco, not many GI specialists know anything about your gut. They are some of the most misinformed or non-informational group of doctors you'll meet.I don't like GI specialists, one iota. Sorry, it's the truth. You'll may have to go long and hard to find one who knows their specialty.

@oakbourne @azdavid Generalities about a subject are rarely helpful.. it is like in Statistics, a sample of 1 or 2 or even 3 person's opinions are meaningless in a general population. If you have actual evidence and experience with a specific issue with a specific doctor.. you can cite that case. It is important with your health to avoid being taken in by hearsay, advertising, and a single opinion of others. Mayo MN GI Department is rated by a credible organizations.. for example, the U.S. News &World Report examined 50 of the leading GI Hospitals/Clinics.(their methods have been respected by those in the field for years/decades). : The top ten hospitals for gastroenterology and GI surgery were ranked as follows:

Mayo Clinic, Rochester, Minn.
Cleveland Clinic, Cleveland, Ohio
Massachusetts General Hospital, Boston
UCLA Medical Center, Los Angeles
Johns Hopkins Hospital, Baltimore
Cedars-Sinai Medical Center, Los Angeles
UPMC-University of Pittsburgh Medical Center
Mount Sinai Hospital, New York City
Mayo Clinic, Phoenix
Houston Methodist Hospital
Check out the way these GI and other specialties are rated..
https://health.usnews.com/health-care/best-hospitals/articles/faq-how-and-why-we-rank-and-rate-hospitals

Hello,
Have you found anyone to help you?
Helen

Hi! I'm posting here because this pain and discomfort has upended my life and I'm worried that something is seriously wrong. since november 2019 i've been experiencing a lot of bloating as well as a feeling of pressure (like a balloon) in my upper abdomen, soreness/pain when i press on my stomach around my belly button, especially to the right of it.

i get full really quickly and have gradually lost my appetite completely...now i can't eat any more than a couple bites of food at a time and i become extremely nauseous. often it feels like food is sitting in my stomach right below my ribs. i sometimes feel a pressure in my throat and have difficulty swallowing. i have been on pantoprazole and omeprazole without any change in symptoms. also went dairy and gluten free a long time ago but it has not helped. i got an upper endoscopy and it didn't reveal any problems, also got a HIDA scan w/ CCK check that also did not show any problems with my gallbladder. i'm in my early 20s and was a great long distance runner in college and loved going out to eat so much but now i just sit at home in pain and i have become depressed. if anyone has ever experienced something similar please let me know i would appreciate it a lot!

@tjm123

i have the same issues and lasted longer than you. Gotten worse every month, had same tests as you and more with MRI and CT scan along with upper scopes. I havent found what helps either, mine goes pelvis to xiphoid and sometimes broadens at sternum out side to side and at waistline and navel. The navel area if you really grab your belly pinching a big hunk of skin under and above navel and squeeze lots of pain. push in these areas and pain like you. I might just try what few others mentioned but taking out my gallbladder only helped me eat more. I was losing a ton of weight over last year just by having no appetite and couldnt eat more. I loved to eat so its so strange, lost 40 lbs in one year, male 52 6ft tall. Let me know if you find something that helps. I can't seem to find anything to take the edge off and now its added a lot of anxiety on top of it. I wake up and feel awful at level 8 pain. You can try suboxone for pain as its now used for that too but have to find a doctor that can prescribe it. YOu will need to take 8mg twice a day probably to make a difference, its a pill that melts under your mouth. I also get the nausea now which I never suffered from and dont have the energy much anymore. keep posting.
Rob