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Multiple Sclerosis (MS) - please introduce yourself

Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)
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@flowbluelady

My 69 yr old husband has primary progressive MS. The majority of his lesions are in the brain which is causing some Parkinson's symptoms in addition to some really strange sensations in his head. Examples:. Feeling like water is sloshing in his head, feeling like water bullets are firing in his head and eyes. His neurologists do not see to understand how he is tortured by these sensations. The gabapentin he takes does not help. Are any members or someone you know experiencing anything similar?

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Replies to "My 69 yr old husband has primary progressive MS. The majority of his lesions are in..."
John, Volunteer Mentor | @johnbishop | Dec 27, 2018

Hello @flowbluelady, welcome to Mayo Clinic Connect. I did find a couple of other links that may describe some of the symptoms your husband is having that are associated with MS.

NIH - Paroxysmal symptoms in multiple sclerosis masquerading as transient ischaemic attacks
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3029382/

MS Focus Magazine - Coping with Paroxysmal Symptoms
-- https://msfocusmagazine.org/Magazine/Magazine-Items/Coping-with-Paroxysmal-Symptoms

Have you mentioned to the doctors that the gabapentin is not helping?

John

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