Video Q&A about Adult Congenital Heart Disease

I have occlusion of SVC syndrome. Been ballooned once Will stenting be a possible option? It has totally occluded again and developed collaterals. I get short of breath when I do anything that requires bending.

Please explain Left Ventricular Non-Compaction Cardiomyopathy

Hi @michelle39 @kelovich @hollybell21 @uconn @jmculhane1 @paulajahlers @neha4 @jhoffmanj @janicepike @wandikarnadi @ninimurphy @thiles @mehlisue @tkterrell @1949 @fayette @gitanjali @nancyirene @grward @gcatalfamo @dorothyma3 @graceuk16 @katiehuston @joannenz @bellheartmom @goodgrief16 @sascha2432, @ethanmcconkey,

I'd like to invite you to join us today, Wednesday, August 22 at 11:45am CT for a live Q&A about adult congenital heart disease with Drs. Sabrina Phillips and Christopher McLeod, cardiologists at Mayo Clinic's campus in Jacksonville, Florida.
Simply click View & Reply in the email notification for details and to sign-up.

Drs. Phillips and McLeod will answer questions live. Post your questions below, before and during the broadcast.
You can participate in the Video Q&A on Connect by returning to this page; the video will be shown at the top of the page.

How do I access the Video Q&A?

Hi @kwaltrip,

The video Q&A is live, and you can view it on this page. It will also be archived for viewing at a later time on this Connect page. https://connect.mayoclinic.org/webinar/video-qa-about-adult-congenital-heart-disease/

I missed answer to explanation of LVNC

Thank you for watching today’s Q&A. The video will be archived on this page for future viewing.
You may also be interested in joining other members who are talking about congenital heart disease and other heart-related conditions.

Ask your questions, share your story, connect and find support here:
https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/
See upcoming and past Video Q&As here: https://connect.mayoclinic.org/webinars

I have a question. Can stiffening heart muscle be reversed so that it won’t develop into CHF?

@msbailey75 My heart muscles are stiffening, and enlarging. They quiver and vibrate as they contract and ease. On a 12-lead ECH, the signal from the left ventricle wall looks like a sawtooth edge. If you have what I have, a hereditary Gelsolin Amyloidosis or any other Amy... with cardiac involvement, right now the answer is no. All you can do is make sure to stay in the best physical shape you can, and relax a lot. Sometimes my tracing is more the shape of a small dome made of saw blades. The QRS is almost non-existent sometimes. There are some meds coming along. Read the Mayo Cardiac Amyloid line. https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"

Hello @msbailey75,

Welcome to Mayo Clinic Connect – an online community where people can share experiences and ask each other questions about any health issue. Mayo Clinic experts also participate in the community through live Video Q&A sessions where they respond to questions posted before and during a video event. After the live event, we archive the video (on this page) for later viewing, and invite members to continue to connect and discuss with each other in the community. However, questions for the expert are closed after the event.

I'd like to invite you to explore more of Mayo Clinic Connect as I'm certain you will find some answers from the insights and experiences shared by members like you.
– Join these discussions in the Heart & Blood Health group:
Stiff Heart https://connect.mayoclinic.org/discussion/stiff-heart/
Stiff Heart - diastolic heart failure https://connect.mayoclinic.org/discussion/stiff-heart-diastolic-heart-failure/
– Follow the Heart & Blood Health group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Please let me know if there’s a particular topic you’d like to talk about or members you’d like to connect with.