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Treatment options for Livedoid Vasculopathy (LV)

Skin Health | Last Active: Dec 14, 2023 | Replies (70)
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@gtalan

14 years ago I had my first vasculitis scare, had a bad rash on both legs then large wounds on my left leg and small wounds on the right leg.
It took three months on strong meds to heal up and the vasculitis went into remission.
The first of 2017 it started again, 6 months and I still have a deep wound on my left leg (nothing but a small rash on the right leg) I been on strong meds and wound care, it's getting better but very slow. I've been told it's Livedoid Vasculopathy or Vasculitis. It's very painful and very rare and I'm very tired of having it. A doctor told me this is about the only type of vasculitis that's painful, 14 years ago the large wounds had no pain but this time it's very painful.

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Replies to "14 years ago I had my first vasculitis scare, had a bad rash on both legs..."
John, Volunteer Mentor | @johnbishop | Jun 19, 2017

Hello @gtalen - Welcome to Mayo Connect. You have come to the right place to get some answers. There is an active discussion on livedoid vasculopathy on Mayo Connect here - http://mayocl.in/2tFTMbL. Can you share the type of medication you are taking? You might want to post your question in the discussion in the above link.

You may also wish to view this discussion about, “Treatment options for Lividoid Vasculopathy (LV)” here: http://mayocl.in/2kZ4s0k and this Mayo Clinic patient story: http://mayocl.in/1l54vIS

John

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shaydee | @shaydee | Jun 24, 2017

Hola tengo 48 y el año pasado me diagnosticaron vasculitis cerebral. Pero tambien tengo HBP fibromialgia. Y estado Hipercoagulable. Es muy dificil para mi lidiar con tanto dolor.

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fitchick40 | @fitchick40 | Sep 30, 2019

If I'm in the wrong group please direct me to the right group. Is Vasculitis an autoimmune disease? My RBC, WBC and Immature granules are too high. The ANA is negative. I get a rash on my left side under my spleen. It goes away on it's own but has come back several times. Before the negative ANA my doctor was convinced I had Vasculitis and wants a biopsy. I don't want to do one unless I really have this. Waiting to hear from doctor.

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Ethan McConkey, Moderator | @ethanmcconkey | Sep 30, 2019

Hi @fitchick40 you may have noticed I moved your post to this existing discussion on Vasculitis as @johnbishop suggested so that you can connect with others who have similar experiences. Simply click VIEW AND REPLY in your email notification to get to your post.

@fitchick40 is the rash your only symptom at this time or do you have others?

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