@actsoflight Welcome to Mayo Connect! We are a caring group of patients, family members, and caregivers who offer support and share our experiences with others along their own journey.

Here is a discussion on Mayo Connect where transplant patients tell their stories: https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/ This is located within the "groups" tab for Mayo Connect, under "Transplants" discussion. Within that same group is another discussion you might find informative https://connect.mayoclinic.org/discussion/transplant-caregiver-advice-got-tips-to-share/

I ask @danab to help you understand what may be involved, as he had a heart transplant a few years ago. I was one of my husband's caretakers when he received a kidney. Making sure he took his medications, didn't overdo it physically, driving him to appointments, cooking, and being a positive influence. were involved. I also attended all post transplant appointments, being a "second set of ears", taking notes and asking questions. For me, it was 3 months of post-transplant care to be considered.

We look forward to hearing from you, and answer questions you have. I would suggest you ask questions within this last discussion, to have a bigger audience. How far up on the transplant list is your friend?
Ginger

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