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Meet @hopeful33250: Striving so No One Feels Alone with Personal Health Challenges Feb 20, 2021 | By John, Volunteer Mentor (@johnbishop)Comment receiving replies
To hopeful...Thank you for your comments about neuroendocrine cancer. It has only been through these kind of support groups that I ended up at Mayo Clinic where I was diagnosed and my life saved. I have been involved with The Carcinoid Cancer Foundation and The Neuroendocrine Foundation. You might be interested in State if CT bill #5297 advocating additional medical education for doctors to detect rare gastro and other cancers.
Replies to "To hopeful...Thank you for your comments about neuroendocrine cancer. It has only been through these kind..."
I just had a Gallium 68 Dotatate scan and my Dana Farber oncologist reports no new neuroendocrine cancer from the top of my head to my knees. I do have pain but I have a lot of adhesions and a large abdominal hernia which are chronic problems. I sent in my report to Mayo as they requested regarding any returning cancer. Thanks for your concern.
My comment to these conversations would be-- funding research on ALL rare (or any) diseases should come before drug rehab, sex-change operations, and a lot of the other nonsense that the government spends tax dollars on.
@musicflowers4u What a wonderful report! All of us who have dealt with NETs can appreciate this good news.
How do you deal with the pain from the adhesions? Is there any possibility that you can treat the large abdominal hernia and thereby reduce the pain from that?
Teresa
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@musicflowers4u I am glad that this website has been helpful to you! Thank you for the information about the bill that would advocate additional medical education for doctors to detect rare cancers - that is certainly needed. I am glad that you were treated at Mayo and found good care.
How are you doing now?
Teresa