Hi @robbinr,
My apologies for the tardy reply. Your message slipped passed me. My husband has had acid reflux since he was 14. It doesn't sound as severe as yours however. I can't imagine.

I'm tagging @hardclose @lizann as they may be able to share some insights with you.

You may also be interested in reading or posting to this thread https://connect.mayoclinic.org/discussion/hello-ive-made-a-decision-to-visit-the-mayo-clinic-in-a/ where you'll meet @cmaso67 @dynesapp @pauletta.

How long has it been since you added Raniditine? Is it starting to settle now?

Make sure you don't eat for two hours (or more) before bed. No tight waist<br />
band or bending. I took Nexium 24 hr but didn't get 24 hour relief so<br />
went to 1 every 12 hours. That really helped. Dr. told me it only lasted<br />
about 18 hours and I tried taking it in morning or night but I had several<br />
hours of problems. Have doctor check your diet and other meds you take<br />
for cause.<br />

A friend commented to me yesterday that her doctor advised her to take Gaviscon or similar medication instead of increasing the dosage of potentially harmful acid reduction drugs. I had increased Prilosec 40mgms in am to an additional 40mgms at night per order of my GI doctor. I still have reflux after several weeks of added dose and now my leg cramps have increased from the increased dosage. I am going to try the Gaviscon advice and will let you know if it works. Some things work for some people and not others.

I too have suffered from reflux for years and so far have undergone 5 RFA of my esophagus since I had hi grade displasia from the reflux. I'm taking 2 Nexium 24 in AM and 2 an hour b4 dinner. Reflux is improving and now I just have low grade displasia in esophagus. nOW JUST HAVE TO DEAL WITH MY hI grade displasia in the cardia of my upper stomach.

@robbinr, with so much information on the Internet many of us bring a possible diagnosis to our medical appointments. The important thing is that you worked with your doctor to find the diagnosis. I, too, am a sufferer of chronic sinus infections. However, I've never had acid reflux type symptoms like the ones you describe in your original message. Have your stomach issues settled now that the sinus infection is being taken care of?

@dandl48 @boogirl @rexanna really appreciate your suggestions about managing reflux. This is such a common condition and your tips will help others looking for help.

@robbinr RFA stands for Radio Frequency Ablation. Glad to see that you got your problem figured out.

Hi Colleen; Yes it is but it is being taken under my Dr.'s supervision out at the Mayo Clinic in MN. I was also told to take 2000 IU of Vitamin D3 since the high dose can affect calcium uptake. I return to Mayo every 3 months for a "Scope" and next due for one the beginning of May. Hopefully the high-grade dysplasia has been reduced since I don't know how many times I can get a Mucosal resection before I would need the nodules and the surrounding area of the stomach cut out which would mean major surgery.

I had acid reflex for years and back in September it then became acid reflex on steroids now upgraded to GERD. My acid reflex was so bad I thought I got poisoned. My throat was on fire from my tonsils to stomach. My stomach hurt so bad I could barely sit. I tried three different acid reflex pills and it took four months to get it under control. 40ml of omperzole 1/2 hr before breakfast and again 40ml before dinner. God forbid I forget to take the pills my chest gets stabbing pains and then the fire burning sensation kicks in.
You need to keep trying different pills and brands. And it does take a few months to get it under control.
Wish you the best..

@robbinr I have developed Barrett's Esophagus after my many years battling reflux. the muscle that controls the acid from coming up from my stomach is very weak and since I have Barrett's in the location of the weak muscle it can't be tightened thru surgery since it would effectively hide the Barretts and potentially it turning in to cancer. Therefore I need to take double the recommended dose of Nexium to control the reflux. Spicy food does increase my reflux if I forget to take Nexium but so does oatmeal.

Hi. I have the same problem. I'm so sorry. It is very terrible. The medicines I'm on I wouldn't recommend to an enemy but they do bring some relief. I don't even want to name them. I have autoimmune disease so I hope that when I get treatment for my disease I can get off of my medicine for this.
I have a positive development! I just made an appointment for next month with a rheumatologist connected with the Mayo clinic in Pittsburgh (I live in Florida but he's the expert in my rare disease)! I'm so excited!
Do you have allergies, asthma or autoimmune disease?