Without you here to help people, it would be pretty dismal. Thank-you for all the advice. Congratulations on beating Lung Cancer.
When I sat down to write my dilemma, it felt like a person on a raft throwing a message out in a bottle! Really, this forum is my last hope. My husband and just read your words...he is crying and I am terrified. You are the only person--doctor, or otherwise--to inform me that nebulizing more than about four times can be harmful. The mucus keeps building up and I can't breathe, so my options are limited. The doctors I have been to have all prescribed the different inhalers. From Symbicort to Albuterol, plus a new one Yupelri, and Ipratropium Bromide, I have tried many of them and they do nothing for me. In fact, the Albuterol and Symbicort make it worse. It feels like my windpipe gets smaller and is numbed. he Yupelri does nothing at all, good or bad help-wise, but does give me a terrible headache that lasts for a few days. No point in using them. The Symbicort, Ipratropium Bromide and Albuterol, were also given in nebulizing form. Unfortunately, that did not improve their usefulness.
Every single day I learn more new things. The second thing you said which I did not know is that Covi can cause Emphysema. Wow. Now it is all starting to make sense. It surely isn't something that a person wants to hear though. All this time, and one year of antibiotics, I have thought the E-coli was the causative factor in this ongoing battle for my life. Now, it just may be that Covid has actually taken another life, albeit more slowly.
The hospital is not a teaching hospital. I live in Indiana, and the second Pulmonologist I went to was an Indiana University doctor. He gave me the nubulizing form of Symbicort to Albuterol, and Ipratropium Bromide. When I told him they did not work, he just commented that it was "very interesting." He would not prescribe any antibiotic, even when I explained that the mucus would thicken to a life-threatening consistency.
Tomorrow, when the newest Pulmonologist office opens, I am calling right away. He is not back in the office for two weeks, but his nurse is there and she relays messages to him. For sure, tomorrow I will hopefully find some answers to this.
Thank-you, for taking the time to help another human being in time of need. God is watching!
P.S. I did post on here about "Suffocating Mucus...." awhile back under "CeeDee," but was having account-hacking problems. So the "Anonymous" is me.
That is fixed now, so it is "Thomason!" Thanks.
@thomason I surely comprehend your thoughts. I have many genetic issues which have been slow to take root and work on me. Gelsolin, LGMD, etc. Sometimes it is hard just to keep going. The doctors I am forced by circumstances to use seem to have no comprehension of the real issues. And the more I earn about these things the more discouraged I become. And society seems determined to demonstrate hatred toward those who reveal any weakness based on genetics. I have been forced to change my life repeatedly because someone in power knows how to hate. Anyway, hang in there. It will all be over too soon anyway.