Thank you John. You are so helpful to everyone. I've read a lot and have compiled a file of all kinds of notes on EM but like others, I find it very confusing.
I am not diabetic, nor do I drink alcohol or eat spicy foods. I've read it can be hereditary, but don't know if that is my case. My father always complained of his feet but never described his symptoms as being like Erythromelalgia, they never looked red. He did have gout from time to time. I, too, am trying to get an appointment confirmed at Mayo as I really need help in understanding my situation and how best to handle it. I've talked to doctors in my area but they have little to no knowledge, and several said I am the only one they have come into contact that has EM which makes me feel very isolated.