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Elevated diaphragm causing COPD type symptoms

Lung Health | Last Active: Aug 31 7:57am | Replies (35)

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@nla4625

@bill5 i was diagnosed with a paralyzed left diaphragm last fall and couldn't tell from your posts if that was your diagnosis. I went to the ER because I thought I was having a heart attack and had a lot of tests, etc. My symptoms were chest pain, breathlessness after climbing a flight of stairs, fatigue and no stamina. An x-ray showed my left lung was elevated. After a short stay in the hospital and several more tests, including a "sniff test" to see if the nerve that controls the diaphragm was functioning, I received the diagnosis. It wasn't working, and I had a paralyzed diaphragm. Did you have a "sniff test" -- maybe that was the barium swallow test? The thoracic surgeon I ended up being referred to wanted to schedule plication surgery right away, where he would use a robot to sew pleats across my diaphragm to keep it in place and keep my other organs from floating up into my chest cavity. He told me the condition was not life threatening and people could live with it. I'm doing breathing exercises and building up my stamina and hope to avoid needing surgery. I think I got really lucky with the medical care I received from literally walking in off the street and hope you have the confidence in your doctors that I have in mine. It's pretty scary when you can't breathe properly, are dealing with other medical issues, live alone, and can't do everything that needs doing on your ranch. I hope you have people to help you! Is the doctor who recommended and would be doing your surgery a thoracic surgeon? How many of these surgeries has he done? Why does he think you need surgery? I'm sorry if you explained this before, I might have missed a previous post of two. I didn't have an endoscopy so think you must have something different from what I have. I'm really sorry for all you're going through. Since you're dealing with at least two major medical issues, would it be possible to go to a major medical center like the Mayo Clinic to get treatment for both? Please take care...and I hope you'll find out more after the endoscopy. Nancy

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Replies to "@bill5 i was diagnosed with a paralyzed left diaphragm last fall and couldn't tell from your..."

@bill5 I hope I wasn't being too inquisitive or didn't come across too strongly in my previous post. If you do have a paralyzed diaphragm, from what I read it is rare, so not many surgeons have had a lot of experience operating on it. I'm just concerned you get to an expert who knows what he/she is doing. I ended up in the capable hands of the chief thoracic surgeon in a major university medical center who specializes in minimally invasive surgery using robots who has done several plication surgeries. If you read through the thread under lung conditions on "paralyzed diaphragms", one of the posters had a really bad outcome that resulted in him being in pain every day and did not recommend plication surgery unless it was absolutely necessary. I don't know when he had the surgery or if they did his surgery with robots and "minimally invasive surgery", which they are now doing. If you can't travel to a major medical center before you make any decision regarding surgery, I really encourage you to seek a second opinion via video conference from a pulmonologist or thoracic surgeon at Mayo or another big medical center. I think your primary care physician has to refer you to the pulmonary department at Mayo to request a consultation but am not positive. After I get my second Covid shot, I'm going to make an appointment with a fascia expert to try the manipulation Jennifer Hunter recommended to see if that helps me. Anyway, you have people here concerned about you wishing you well in more ways than one. Nancy