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Spleen involvement in ET

Blood Cancers & Disorders | Last Active: Mar 18, 2021 | Replies (5)

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@lorena2021

Hello, My mother was diagnosed with MPN ET back in 2017 and that's because I kept seeing PLT numbers increase and I got curious, or else no one would have done anything about it. We ended up seeing a hematologist oncologist and she was place on baby aspiring, and we were told she is the type of person that builds blood clots but never thought anything more than that. My mom would sometimes remember and sometimes take it baby aspiring, not knowing the seriousness. As we hit the pandemic, my mom had a bad fall and she tore her shoulder and huge hematomas all over. Since we couldn't go to a doctor because of the pandemic being early on. We stayed home and I tried my best to care for her and make her comfortable to ease the pain. All this started increasing other symptoms which I couldn't understand. Severe Fatigue, itchiness all over that cause her skin to bulge up, pain in abdomen under ribcage, it just came to fast. We are still trying to educate ourselves on this ET because I don't know how to make her feel better and it breaks my heart to see her unhappy and not be herself. What other resources are out there that can explain all this symptoms and if they are forever?

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Replies to "Hello, My mother was diagnosed with MPN ET back in 2017 and that's because I kept..."

Hello @lorena2021,

I'm sorry to hear that your mother is having such uncomfortable symptoms. I appreciate your concern for your mom and seeking answers to help her. We all need advocates and it sounds like you are doing a good job.

Since her symptoms have worsened as a result of the fall, does she have an appointment to see a hematologist/oncologist now?

If not, I would encourage you to get an appointment for her. The doctor might want to change her treatment plan given the change in her symptoms.

Will you post again and let us know how your mom is doing?