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susia (@susia)

Tremors post kidney transplant

Transplants | Last Active: Sep 4, 2022 | Replies (44)

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@athenalee

Thank you JK for your insights. I’m glad you no longer have tremors. They are certainly challenging in their impact on daily life. Cooking and writing are amongst my favorite and daily activities which are increasingly a challenge! I’m thinking I’ll have to switch off Tacrolimus, but it seems to be the best. Plus, the alternatives all have their own potential side effects and are unknown to my body! I never thought much about the aftermath of transplant surgery. So far it’s almost as challenging as pre-transplant…

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Replies to "Thank you JK for your insights. I’m glad you no longer have tremors. They are certainly..."

@athenalee, Have you and your transplant doctors found any resolution for your tremors? I thought of you couple weeks ago when my labs were drawn and the results made me wonder if my Tacrolimus would be increased. Did you get to speak with the doctors? Do you know if the Tacrolimus or was the culprit in your situation?
And most important – How is the liver doing!