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Tremors post kidney transplant

Transplants | Last Active: Sep 4, 2022 | Replies (44)

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@rosemarya

@athenalee, Tacrolimus can cause tremors. They usually go away after body adjusts to the level of Tacrolimus that your body needs. It is different for each of us. When you say that you are starting to develop other neuropathy symptoms, does that indicate that your doctors thing there is something else going on besides tacrolimus side effects?

I hope you get some answers and some relief. I've got my fingers crossed that the tremors diminish while waiting for the appointment.

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Replies to "@athenalee, Tacrolimus can cause tremors. They usually go away after body adjusts to the level of..."

Thank you. My transplant doctor does believe it is related to Tacrolimus, but she is concerned about the rapid onset of severity and additional neuropathy symptoms. My Tac dosage was reduced by 1 mg and Mycophenolate doubled in February. I’ve not had labs since to see if my liver enzymes went up. But my symptoms have definitely increased markedly. She doesn’t want to switch me off Tac yet as I had to be taken off prednisone shortly after my transplant due to adverse reactions. So, she wants be to consult with a neurologist. I’ve also recently learned that PBC can also cause tremors. I did have occasional minor tremors starting around age 50...but never paid attention to them. So, presents another variable into the diagnosis. I’m hoping for answers from the neurologist, so we’ll see!