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Tremors post kidney transplant

Transplants | Last Active: Sep 4, 2022 | Replies (44)

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@contentandwell

@athenalee That's a good website. I do not have tremors now, I am on sirolimus and do not know if that can also cause tremors, but I had very shaky hands before transplant, before I was ever diagnosed with liver problems, and they were diagnosed incorrectly as essential tremor. Back then I couldn't take pictures, they would be blurry, nor could I get a spoonful of soup to my mouth without it all spilling out. I hope they will be able to reduce your tacrolimus soon and that it will improve your tremors.

It sounds as if you have learned to make some good accommodations. I didn't read far into that website but I am sure that it makes suggestions too.

@susia Your doctor has not suggested any medication change that would help? I know sometimes there are simply some things you simply need to learn to live with but I would think this might be able to be helped with a medication change. I hope they will think of something, as in possibly reducing tacrolimus and supplementing with something else. I am on both sirolimus and prednisone. I have not had any problems other than prednisone is not good for your bones and I now have osteoporosis.
JK

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Replies to "@athenalee That's a good website. I do not have tremors now, I am on sirolimus and..."

Thank you JK for your insights. I’m glad you no longer have tremors. They are certainly challenging in their impact on daily life. Cooking and writing are amongst my favorite and daily activities which are increasingly a challenge! I’m thinking I’ll have to switch off Tacrolimus, but it seems to be the best. Plus, the alternatives all have their own potential side effects and are unknown to my body! I never thought much about the aftermath of transplant surgery. So far it’s almost as challenging as pre-transplant...