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Tremors post kidney transplant
Transplants | Last Active: Sep 4, 2022 | Replies (44)Comment receiving replies
I applied to your posting earlier, but wanted to suggest a website where you might find helpful resources - https://essentialtremor.org/. I’ve learned a lot about adapting, holding scissors for cutting my bangs and using my left hand to balance the scissors; same thing when dishing out food; I bought a Ninja Express Chop to cut vegetables, etc. Unfortunately, my work involves typing, so I am increasingly having issues using a keyboard. I’ve turned to two finger typing for the most part on my laptop and using Siri on my iPhone for texting. It is frustrating, so I hope you can find some solutions. I’m too early out from my transplant to reduce Tacrolimus anymore and I’m not yet convinced about switching to Mycophenolate.
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@athenalee That's a good website. I do not have tremors now, I am on sirolimus and do not know if that can also cause tremors, but I had very shaky hands before transplant, before I was ever diagnosed with liver problems, and they were diagnosed incorrectly as essential tremor. Back then I couldn't take pictures, they would be blurry, nor could I get a spoonful of soup to my mouth without it all spilling out. I hope they will be able to reduce your tacrolimus soon and that it will improve your tremors.
It sounds as if you have learned to make some good accommodations. I didn't read far into that website but I am sure that it makes suggestions too.
@susia Your doctor has not suggested any medication change that would help? I know sometimes there are simply some things you simply need to learn to live with but I would think this might be able to be helped with a medication change. I hope they will think of something, as in possibly reducing tacrolimus and supplementing with something else. I am on both sirolimus and prednisone. I have not had any problems other than prednisone is not good for your bones and I now have osteoporosis.
JK