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Tremors post kidney transplant

Transplants | Last Active: Sep 4, 2022 | Replies (44)

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@susia

It’s been 9 years they just increased my tacrolimus a couple of months ago it just so hard to work some times with my hand shaking I have mentioned it to my Dr and I have gotten no real response I haven’t seen my Dr in a face to face visit in a year because of COVID-19

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Replies to "It’s been 9 years they just increased my tacrolimus a couple of months ago it just..."

I applied to your posting earlier, but wanted to suggest a website where you might find helpful resources - https://essentialtremor.org/. I’ve learned a lot about adapting, holding scissors for cutting my bangs and using my left hand to balance the scissors; same thing when dishing out food; I bought a Ninja Express Chop to cut vegetables, etc. Unfortunately, my work involves typing, so I am increasingly having issues using a keyboard. I’ve turned to two finger typing for the most part on my laptop and using Siri on my iPhone for texting. It is frustrating, so I hope you can find some solutions. I’m too early out from my transplant to reduce Tacrolimus anymore and I’m not yet convinced about switching to Mycophenolate.

@susia, Your dose of tacrolimus was increased a couple of months ago and I want to ask if you have had your labs checked since then?
Whenever my tacrolimus dose was changed, I remember getting repeat labs to check on the level. This was in addition to my scheduled routine labs. I had my routine labs drawn yesterday, and the results are faxed to my transplant team at Mayo Rochester. I also have a prograf kit (tacrolimus) that is mailed to Mayo. My nurse coordinator will then notify me if I need an adjustment to the dosage of the tacrolimus.

I hope that you have had a response from your doctor by the time that you see this reply. By the way, another thing - Who is monitoring your post transplant care and medications? Is it your transplant team, or a Primary Care Physician?