Lymphocytes in the esophagus: Lymphocytic esophagitis (LE)

Hello @kaforester3

You post an interesting question. It appears that lymphocytic esophagitis (LE) is considered rare.
I was not familiar with this type of esophagitis so I checked on Mayo Clinic's website and found this information.
https://www.mayoclinic.org/diseases-conditions/esophagitis/symptoms-causes/syc-20361224#:~:text=Lymphocytic%20esophagitis%20(LE)%20is%20an,eosinophilic%20esophagitis%20or%20to%20GERD%20.
In this article it says that "LE may be related to eosinophilic esophagitis or to GERD." In thinking about this, I'm wondering, did this diagnosis follow a change in medications you were taking?

It is important to find a very good specialist who is well-versed in treating any unusual disorder such as this. Are you seeking a second opinion with a specialist who has some experience with LE? What does your current doctor say about your treatment?

I see you have already received some help from a Mentor.... I am sorry I can't help except to say this is an amazing web site; I have a multitude of other issues and as my husband says (he does too) take one day at a time and I respond.... can I take one hour at a time. Sorry to hear about your illnesses and hopefully you can at least find out what has helped others.... take care and I wish you the very best. J. (Canada)

I just found this site and am looking forward to searching through discussions, comments, and learning more about my multiple diagnoses.

Regarding this discussion specifically, I realize is several years old.

I was diagnosed with Lymphocytic Esophagitis nearly a year ago following Dysphagia that continued worsening. I had 3 EGDs with Dilations within 5mos and through biopsies was diagnosed with rings, strictures, furrows, and LE, along with a 'tiny' hiatal hernia, and Schatski's Ring during the 3rd procedures.

I've been in 40mg Pantoprazole & 0.125mg Hyoscyamine for 8 months.

I've made major dietary changes that, along with the meds, has helped a little with the Dysphagia, however it hasn't resolved completely. Thankfully food doesn't get stuck and come back up with every meal or pill, but it still happens multiple days per week.

I'll try the breathing exercises, as anything that may help is worth a try.

I have a f/I with my gastroenterologist next week, so will see where we go from here.

Thanks to the Mayo Clinic and their medical staff who provide guidance. I look forward to checking out my Sarcoidosis and other issues.

Thanks everyone! Hope you find good doctors and the right treatments for whatever ails you.