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My donor was CMV positive but i was not told it was a high risk heart. After yransplant i was immediately started on a high dose drug to reject CMV. I don't know what the drug was, but i guess it worked.i am now 18 years out and doing well.

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Replies to "My donor was CMV positive but i was not told it was a high risk heart...."

@azdan99, Did you ever, in your wildest imagination expect such a remarkable life? Organ transplant recipients have such amazing stories!
Are you planning to participate in the Heart transplant research interview that @estrada53 has shared?

@azdan99 Hi Dan good to see you again. I'm not sure either if my High Risk status was due to CMV either. Your comment makes me wonder even more why mine was high risk. Either way like yourself for me it's been 3 years and no issues. If it wasn't for the blood test I wouldn't even know I had it.

Hi @azdan99 and @danab! I'm happy to know that you are enjoying your extended life after your transplant and that the cytomegalovirus (CMV) was short-lived and immediately taken care of! And thanks to the two of you for bringing up the topic of CMV. Many of us have struggled with this virus and it hasn’t been fun! Having CMV does not label a donor heart as increased risk, yet it seems to be risky and have such an impact on our health. Increased risk is reserved for organs from donors who have the possibility of transmitting HIV, Hep B or Hep C to the recipient. It’s not a pretty picture, but over 39% of all transplanted organs are now designated as increased risk. It doesn’t mean that there is an active infection, just the possibility. And these organs provide such wonderful opportunity to so many of us!

Here are a few links to help: one for (1) CMV – https://www.mayoclinic.org/diseases-conditions/cmv/symptoms-causes/syc-20355358 and (2) for a medical definition of increased risk donor organs from OPTN – the Organ Procurement and Transplant Center – https://optn.transplant.hrsa.gov/governance/public-comment/guidance-on-phs-increased-risk-donor-organs/#:~:text=The%20phrase%20%22increased%20risk%22%20refers%20to%20the%20donor,interpreted%20to%20be%20a%20predictor%20of%20graft%20survival.

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