← Return to Peth test: Waiting for transplant
DiscussionPeth test: Waiting for transplant
Transplants | Last Active: Mar 3, 2021 | Replies (6)Comment receiving replies
Replies to "Hi @srcroll1, welcome to the Transplants group. I'm afraid I can't answer your question about PEth..."
We were listed at another center and decided to switch due to we weren’t getting answers on medical questions they weren’t responding to medical issues. We really only went there because my husband was impatient and they told us he wouldn’t make it out of the hospital and they refused to transfer him to any other hospital so it was the only decision at the time to save him. so we went off the list there and had everything transferred. They had us do an online zoom meeting as an introduction (others were there also) they said in the meeting if your going to drink do so this weekend as they require abstinence after that but it would not hurt you if you tested positive on Monday. It was really meant for patients just starting the process they could test positive and then test negative for the few months all the testing takes (they said you only stay positive for 2 weeks even if heavy alcoholism drinking) my husband had already had all the tests done He was honest with them about drinking when we went for clinical and how much etc..honestly he had a few more than he should the one and only night but that was it. He tested positive 2 days later on Monday at 30 and then 8 days later at 28 they said he had to still be drinking even though 1000% he has not. We offered to let them have access to our cameras and gps etc.. as that’s the only way I can think to prove he hasn’t Had anything else is for them to watch him and be able to track everywhere he has been and see he couldn’t have had anything. (They said he had to be consuming 4-5 drinks at least once a week for that level so it should be able to be traced when everything we do is logged or recorded) But they said the test has no false positives and that he has to still be drinking! He is completely healthy other than his lungs (they even said one of the best hearts and swallow tests they had seen) so no reason other than the peth test not take him. We haven’t met the social worker yet as all that was put on hold when he failed the test the second time. It honestly just makes no sense we asked for the second test..we drove 4 hours pulling our kids out of school and dealing with them in the car lol and we can’t adopt our 15 month old son we have had since birth if he doesn’t get the surgery..why would he jeopardize all that for one night of drinking. we asked for an everyday urine test I just don’t know what else to try...sorry I am rambling just so hard because our only option is to go back to the other center and I just have absolutely no faith or trust in them anymore. They did say if he gets treatment and stays sober for 6 months then he would qualify but he doesn’t have 6 months he barely made it out of the hospital and every time we would go to clinic they really feel he should still be in the hospital. Sorry for all the ranting