Hello @sundance6 I’ve been reading all of your helpful posts in the past and now you’re asking for help. CFS seems to be a difficult disease to diagnose (as are all autoimmune diseases). It gets very frustrating, doesn’t it? You said that you’re seeing your PCP this week—do you think he/she can give you a referral to a rheumatologist? They are the doctors who are supposed to be up on autoimmune diseases.
I added this discussion about getting a proper diagnosis. See if it might give you any tips https://connect.mayoclinic.org/discussion/tips-for-getting-a-proper-diagnosis-of-an-autoimmune-disease/
Let us know what your doctor says.