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Illusive Diagnosis, Pain Increasing

Bones, Joints & Muscles | Last Active: Sep 3, 2023 | Replies (39)

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@jeanniem

I appreciate your wisdom. With so many docs suggesting CRPS, and knowing I meet the criteria you listed, I would be foolish not to strongly consider this dx. My ankle is currently pretty swollen again which sets off the neuropathy. I thought the ankle brace was helping - and I do feel steadier in it - but maybe the relief had more to do with the week of limited activity when it was so cold. It can be hard to find a rhyme or reason. My neurologist says losing weight would help - at the very least it would take some stress off of my joints. I have always been overweight. Trying to drop pounds with this ankle is an uphill battle. Being discouraged on high pain days doesn't help! Last year I was able to do gentle biking (no hills) for about 45 minutes at a time with few consequences. I am hoping I can do that again when Spring hits. On days like today I just have to remind myself that not every day is a high pain day and give myself permission to let my body take it easier. I was raised in a family of "go until you drop" so I feel lazy when others are working and I am not. The other day was a higher pain day. My mom and sister were both running around the house cleaning, etc. I was sitting at the desk doing their taxes so I was doing something productive but I felt lazy because I wasn't up running around.

Anyway, thank you for your support. It is nice to chat with someone who has a "pocket" for what is going on. 🙂

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Replies to "I appreciate your wisdom. With so many docs suggesting CRPS, and knowing I meet the criteria..."

I understand. I “went” until I dropped. I still have that drive even now when my body won’t let me so that is why I advocate. Sometimes I bite off more than I can chew.
Your ankle feels better in the brace because it’s unstable. But give it a break when you are not up and about. That may help with the swelling. Put it up if you have a recliner. I had mine in a brace too before they knew what was wrong with me. 😉