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Illusive Diagnosis, Pain Increasing

Bones, Joints & Muscles | Last Active: Sep 3, 2023 | Replies (39)

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@faithwalker007

CRPS is caused by Windup from the brain to the peripheral and affected nerves in the central nervous system (I.e, in the back and along the spine and shoulder) if it progresses.
If you have TYPE I, you have a chance of remission but your PT must treat you Specifically for CRPS. If you have type two, remission is unlikely but you need to stay mobile as much as you can.
The issue is that mobility can cause flares but lack of mobility will lead to increase in wasting disease and more and mobility.
I am not saying that anybody in particular may have this disease. I do though. I am in this catch 22 situation and it’s not fun.

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Replies to "CRPS is caused by Windup from the brain to the peripheral and affected nerves in the..."

I appreciate your wisdom. With so many docs suggesting CRPS, and knowing I meet the criteria you listed, I would be foolish not to strongly consider this dx. My ankle is currently pretty swollen again which sets off the neuropathy. I thought the ankle brace was helping - and I do feel steadier in it - but maybe the relief had more to do with the week of limited activity when it was so cold. It can be hard to find a rhyme or reason. My neurologist says losing weight would help - at the very least it would take some stress off of my joints. I have always been overweight. Trying to drop pounds with this ankle is an uphill battle. Being discouraged on high pain days doesn't help! Last year I was able to do gentle biking (no hills) for about 45 minutes at a time with few consequences. I am hoping I can do that again when Spring hits. On days like today I just have to remind myself that not every day is a high pain day and give myself permission to let my body take it easier. I was raised in a family of "go until you drop" so I feel lazy when others are working and I am not. The other day was a higher pain day. My mom and sister were both running around the house cleaning, etc. I was sitting at the desk doing their taxes so I was doing something productive but I felt lazy because I wasn't up running around.

Anyway, thank you for your support. It is nice to chat with someone who has a "pocket" for what is going on. 🙂