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DiscussionIllusive Diagnosis, Pain Increasing
Bones, Joints & Muscles | Last Active: Oct 6 1:44am | Replies (43)Comment receiving replies
Replies to "Thank you, Erika. I have received some unhelpful feedback. My first neurologist did an EMG. There..."
Hello Jeanniem, I am so sorry to hear what you have been going through! For your pain, journey to get diagnosed and relief, and how inappropriately you have been treated. I think you should let the docs who need to be shown, the error of their ways. Let them know the results of your diagnostics that identify what's wrong with you. And, that you were treated inappropriately and didn't deserve that. Hard to do but a good way to pay it forward on behalf of future patients and hopefully humble those who need to be.
Unfortunately your story is common. Good for you to keep being your own advocate and being so participatory as you team with those who hold the quality of your life in their hands.
I wish you all the possible best in every way.
Warmest wishes, Sunnyflower