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Lost: Being sick and not knowing why wears on you

Just Want to Talk | Last Active: Mar 31, 2021 | Replies (16)

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@toomanyoars

Update: The blood tests were inconclusive for an adrenal tumor for the most part. Two of the tests he ordered weren't run and one came back with a negative result so he continuing down this course isn't productive. After a long discussion he agreed to send me to a new rheumatologist and endocrinologist. Right now I am fighting my insurance to cover because neither are in my area. They are both at a better hospital a couple hours away. Obviously I am a little frustrated, not that I want a tumor, that would make me insane but I want answers and the availability to get answers. He and I talked about going to Mayo and it not being cost affective right now. It's hard when you are in that rock and hard place when you are ill... no diagnosis but too sick to work and unable to get temporary disability to help pay for the medical treatment to get a diagnosis...living in a state where even though your income is minimal you can't get temporary assistance (Medicaid) to go to the physician and any decent insurance plans are too expensive so you pay less and pray it covers anything at all and accrue more and more medical debt. I had a pretty good life and a great career before all of this. I miss it but I am still getting up every day putting one foot in front of the other. It's just harder some days.

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Replies to "Update: The blood tests were inconclusive for an adrenal tumor for the most part. Two of..."

@toomanyoars I am so sorry to hear of your continued frustration. It makes everything so much more stressful, doesn’t it. You mentioned you’re fighting with your insurance company because of needing to see a physician at a distance. Do you think the doctor, who recommended the new physicians, would be willing to write to the insurance company or call saying this is the best and only option for you right now? Might be worth asking him/her. Will you try?

@toomanyoars I was thinking about you and just wondered if you were ever able to get help from your insurance company? Were you able to see the rheumatologist and endocrinologist? If you care to, please let me know any updates.