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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)

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@katiejo59

I don't post very often but have been following al the posts re: neuropathy worsening. And my query is this: If you could go back in time, would you get the 2nd vaccine? I'm having some mild reservations & due to receive it in ~ 2 weeks. I didn't let my PMD know that I had such problems walking, in general, but didn't last that long. There was a bit more burning & restless legs. Plus got a low-grade temp. increase. I'm ok now but was a bit of rough patch. Got the Moderna. Have 2 older sisters....one got the Pfizer a couple of wks. before my 1st shot; had only a little fever & tiredness. Got the 2nd and great. The other sister got the Mderna a few days ago & has not, as of yet, sent an email. I take that back...she wrote later that evening after receiving it & reported both she & hubby had sore arms & a touch of nausea. I don't think she as had anything else or would have said. But I have had pre-existing neuropathy for a few years and neither of them are "lucky" to have that in their hx. Would someone(anyone) advise re; getting 2nd Moderna? Because a pharacist told me to maybe just get the J & J shot and be done w/ it that way. Thanks. I know you'll are not doctors but sounds like more symptoms than I had & am stewing a bit over whole thing. Kathy

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Replies to "I don't post very often but have been following al the posts re: neuropathy worsening. And..."

Hi. I also had a history of neuropathy but it was mostly dormant. Got moderna 1st dose Jan 5. Within hours I was burning all over. Still hasn’t resolved. It has improved but I went back on gabapentin so hard to say how it would be if I quit taking that. My neurologist totally dismissed the possibility that it was the vaccine but my PCP didn’t. She felt it was possible since so many vaccine unknowns. She wouldn’t advise on the 2nd dose but did tell me her concern would be a 2nd dose causing irreparable damage. I stressed over the decision but I don’t regret skipping the 2nd dose as much as I wanted it. But everyone is different and health risks are different so we are all really on our own in this decision.

Hi Kathy, I had the first Moderna on February 26th. I had a sore arm for a couple of days and felt really tired the day of the injection. I'm due for the 2nd shot tomorrow. We' see how it goes.

I want to more about the J & J vaccine. I think it depends on the person on how you feel & with all my problems I am scared of it.