COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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@jesfactsmon Hank. Thanks for always keeping us in the loop

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@joeyd5641

same thing happened to me. It was dormant and then the 1st shot brought it back for a week,and went away..So i got the 2nd shot stupidly and now 3 weeks later, raging neuropathy everywhere. MOstly an intense itch in the nose and burning in the feet. Let me know if yours resolves.

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I’m sorry. Yes mine got bad within 8 hrs of first dose. It was like someone flipped a switch. It was burning all over-feet legs hands arms back mouth and ringing in ears. It’s been almost 2 mo and still there. Don’t beat yourself up. If you’re like me added stress makes the burning worse. You didn’t know. Go back to whatever regimen that calmed it years ago and see if that plus time works. It’s what I’m doing. It’s all we can do.

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im sorry to hear its still happening. Yes, i even had the ear ringing in my good ear which was weird. Why do you think this is activating Nueropathy in all of us? I hope yours goes away soon

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I wish I knew. Until enough reports of neuropathy flares are entered in the vaers system it won’t get any attention. Two of the three medical providers I saw dismissed the vaccine as the cause. No other variable but they still dismissed it because it’s not an “expected” reaction.

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@joeyd5641

im sorry to hear its still happening. Yes, i even had the ear ringing in my good ear which was weird. Why do you think this is activating Nueropathy in all of us? I hope yours goes away soon

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I’ve had the ringing in my left ear, was very bad the first night, calmed a little, now present 24/7 and very annoying. My neuropathy symptoms didn’t get worse until about 3-4 days after the 2nd shot, I still get some transient new ones but for the most part everything much better except the ear which I hope resolves. Did your ear ringing stop? Helen

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@mawagner13

I wish I knew. Until enough reports of neuropathy flares are entered in the vaers system it won’t get any attention. Two of the three medical providers I saw dismissed the vaccine as the cause. No other variable but they still dismissed it because it’s not an “expected” reaction.

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I filed a report, it would be interesting to know how many they’ve received to date.

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@helennicola

I’ve had the ringing in my left ear, was very bad the first night, calmed a little, now present 24/7 and very annoying. My neuropathy symptoms didn’t get worse until about 3-4 days after the 2nd shot, I still get some transient new ones but for the most part everything much better except the ear which I hope resolves. Did your ear ringing stop? Helen

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I had and still have tinnitus before this shot but the weird ringing from the shot went away after about 2 weeks. How long did it take your post shot neuropathy to go away?

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@joeyd5641

I had and still have tinnitus before this shot but the weird ringing from the shot went away after about 2 weeks. How long did it take your post shot neuropathy to go away?

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My neuropathy flare subsided after about 2 wks. But still get some transient burning and tingling in different parts of my body which only last for a short while. I had tinnitus at times prior to the shots, but not like I still have and it’s been almost 3 wks. since 2nd shot. Are you feeling better overall? Helen

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@sunnyflower

Keep us posted on your and Linda's 2nd dose. Here's hoping! My 2nd is tomorrow. Take care, Sunnyflower

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...excuse me for asking but have been reading about side effects for covid vaccine as I already have neuropathy and tinnitus and am a bit worried.. I am hoping your 2nd dose went well and that you are like many who had no side effects, J. p.s. We havent been offered any type/brand of vaccine yet where I live in Ontario Canada.... just started giving last week to front line workers.

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@lacy2

...excuse me for asking but have been reading about side effects for covid vaccine as I already have neuropathy and tinnitus and am a bit worried.. I am hoping your 2nd dose went well and that you are like many who had no side effects, J. p.s. We havent been offered any type/brand of vaccine yet where I live in Ontario Canada.... just started giving last week to front line workers.

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Helen, did it last 2 weeks after the 2nd shot or 1st? Lacy, it seems most people here experienced significantly worse or new onset of neuropathy after the covid vax

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