I have small fiber neuropathy non length dependent also. Can you tell me how yours started? Mine started when I woke up one morning sudden onset. It was everywhere. Pinpricks. I have read where people have had the shots and then had those symptoms. My shots were in January. I woke up one am in March and mine was full blown on. I have eye pains also. I want to take the flu shot and a booster for Covid but I am worried about it. This is new to me so I am just trying to take it all in. Mine may be idiopathic. I will know soon.

Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen even more?

I developed neuropathy in my feet three weeks after my second Pfizer Covid-19 vaccine which was on March 10. It has remained the same. I have seen a neurologist and had the muscle and nerve tests which were normal. I am reluctant to get a booster.

Thank you, Kathryn

@kathleen123 I received the same vaccine and I have CIDP. My daily symptoms have definitely been exacerbated since I got the vaccine. How have you been since the 2nd shot or did you decide not to move forward with it?

I had TN about six years ago and it went away with gabapentin. My first vaccine caused me terrible back pain the next day and lasted a week. I got my second vaccine and was only sick for one day. However my TN has come back with a vengeance and no amount of gabapentin touched it. Had to go on carbamazepine and so far so good. I just hope to get off all medication soon. I won’t be getting the booster!

Hi,
Just wanted you to know that along with my neuropathy, I've received 2 original vaccines and 3 boosters. The vaccines and 4 out of 5 shots led to an uncomfortable week, but compared with what we live with, it was no big deal. Getting Covid is far worse.

I had a similar experience. I had my first two shots with no particular side effects, and was working a job on my feet on concrete several hours a day, so I attributed my burning feet and numbness in feet and then in hands to my work. After my booster shot (All Moderna) I was violently sick to my stomach after 10 hours, and my entire legs were reververating, numb, etc. I have hald off getting the recommended 2nd bivalent booster, although it has now been a year since my last one. My feet, legs to my knees and my hands and face are feeling hot, stiff, numb and sometimes electrical shock type feelings. My doctor believes it may be small fiber non-length dependent neuropathy. I want to protect myself against COVID but I am very apprehensive that the moderna may in fact have caused or contributed to my worsening symptoms.

I did not have peripheral neuropathy UNTIL I got the Moderna vaccines. No booster for me. Life is a living hell since getting vaccinated for COVID-19.

Hola.
Tengo neuropatía desde hace más de 10 años. Empezó de forma suave. Sospecho de varias cosas,entre ellas el Tamoxifeno que empecé a tomar en 2006 después de una operación de cáncer de mamá.Tambien recibí rayos,pero no quimio. A los pocos meses de empezar con mi tratamiento de tamoxifeno empecé con terrible calambre. Y o los suponía causados por el tamoxifeno.Insisti mucho a mí medico oncólogo que me permitiese dejar el Tamoxifeno,pero nunca me permitió hacerlo. Solo me libero , 5 meses antes de lo que debía ser el final. Lo tomé 4 años y medio.No tengo bien en claro cuando comenzó mí neuropatía por qué no fue un comienzo claro,exacto. Recuerdo que empecé a tener la sensación que mis zapatos sandalias ,estaban desabrochados y me los ajustaba permanentemente. También tenía una pesadez al caminar. Y me di cuenta que cuando quería saltar ,por ejemplo.a la soga,no podía. Mí cuerpo no respondía a mí orden mental. Tampoco correr,.Todo eso se fue convirtiendo en absoluto y permanente.Consulte a unos neuróloga,que inmediatamente me ordenó un electromiograma,a lo que me negué,pues me aterra el efecto que produce la electricidad. Me tuve que exponer a un sin fin de análisis de sangre para descartar posibilidades.. El diagnóstico de 3 neurólogos fue el mismo. Aún me encuentro con que insisten con el electromiograma , a lo que me sigo negando,pues creo que no tengo por qué sufrir esa prueba,para corroborar algo que ya está casi corroborado.
He perdido algo más de sensibilidad en la parte superior de una de mis piernas. Una está más afectada que otra. Tengo en los pies bastante espasticidad en los movimientos. Pero ningún dolor,cosa que considero un lujo. Nunca he tenido dolores de ningún tipo. Soy una agradecida a la vida.
Y cómo dijo el poeta. " Muy cerca de mí ocaso,yo te bendigo vida...."