I have small fiber neuropathy non length dependent also. Can you tell me how yours started? Mine started when I woke up one morning sudden onset. It was everywhere. Pinpricks. I have read where people have had the shots and then had those symptoms. My shots were in January. I woke up one am in March and mine was full blown on. I have eye pains also. I want to take the flu shot and a booster for Covid but I am worried about it. This is new to me so I am just trying to take it all in. Mine may be idiopathic. I will know soon.

Hi Kathleen: Did you get your second vaccine, and if so, did your neuropathy symptoms worsen even more?

I developed neuropathy in my feet three weeks after my second Pfizer Covid-19 vaccine which was on March 10. It has remained the same. I have seen a neurologist and had the muscle and nerve tests which were normal. I am reluctant to get a booster.

Thank you, Kathryn

@kathleen123 I received the same vaccine and I have CIDP. My daily symptoms have definitely been exacerbated since I got the vaccine. How have you been since the 2nd shot or did you decide not to move forward with it?

I had TN about six years ago and it went away with gabapentin. My first vaccine caused me terrible back pain the next day and lasted a week. I got my second vaccine and was only sick for one day. However my TN has come back with a vengeance and no amount of gabapentin touched it. Had to go on carbamazepine and so far so good. I just hope to get off all medication soon. I won’t be getting the booster!

Hi,
Just wanted you to know that along with my neuropathy, I've received 2 original vaccines and 3 boosters. The vaccines and 4 out of 5 shots led to an uncomfortable week, but compared with what we live with, it was no big deal. Getting Covid is far worse.

I had a similar experience. I had my first two shots with no particular side effects, and was working a job on my feet on concrete several hours a day, so I attributed my burning feet and numbness in feet and then in hands to my work. After my booster shot (All Moderna) I was violently sick to my stomach after 10 hours, and my entire legs were reververating, numb, etc. I have hald off getting the recommended 2nd bivalent booster, although it has now been a year since my last one. My feet, legs to my knees and my hands and face are feeling hot, stiff, numb and sometimes electrical shock type feelings. My doctor believes it may be small fiber non-length dependent neuropathy. I want to protect myself against COVID but I am very apprehensive that the moderna may in fact have caused or contributed to my worsening symptoms.

I did not have peripheral neuropathy UNTIL I got the Moderna vaccines. No booster for me. Life is a living hell since getting vaccinated for COVID-19.