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Living with High-Risk C-Diff and Preventing Re-InfectionInfectious Diseases | Last Active: Jun 27, 2022 | Replies (25)
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@msgoose76 Welcome to Mayo Clinic Connect, a place to give and get support.
You said that you are making a decision to have a Abbott Burst DR SCS. Is that for pain relief and if so, is your cause of pain?
I will not lie to you. It’s not nearly as good as the trial but I believe that is due to an arrogant, know it all, SOB of a neurosurgeon who didn’t listen to a word I said. He just wanted a profit of the lead he used, “the one he designed.”
If you have a neurosurgeon that uses the information obtained in the trial, inserts the correct lead or leads you need where you need them and you are PATIENT during the initial programming phase, it will benefit you.
Do not expect miracles. Expect treatment. Do not expect your pain to vanish, expect it to be managed like you are having done right now.
And communicate with your Abbott person. Build a relationship with whomever it is. He or she will be the most valuable person to you. Learn about your system inside and out, and you will benefit. Don’t and you won’t.
I will say this: if you don’t have a mental health counselor or psychiatrist to help you through your pain management especially if you are getting a SCS, find one. The emotional toll that enduring pain that warrants one is overloading on the psyche and it helps to vent to someone who knows nothing about you but words on a page. If you weren’t required to talk to one before your trial, stop now and see one. A SCS is not an easy thing to manage or live with.