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@claire39

Hello capacity.......I have had ET and myloproliferative neoplasm for almost three years now. The 500mgs of Hydrea seem to work okay for me. I take one every day. I understand what you mean about the blood Doctor being evasive about the disease and the treatment. When I ask questions he tells me to let him do the worrying and that he will take good care of me. That is why I joined the Mayo Clinic forum, to get answers and feedback from others with the same problems. For the most part I think I am doing well but I still have fatigue and a bit of itchiness, my face is always red with pinpoint marks and I have tried every cream available and nothing works. Do you have any symptons such as mine. I have heard from others that the doctors do not like to discuss details they are just interested in the blood work. If you have any questions that I might be able to answer please contact me.......Claire39

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Replies to "Hello capacity.......I have had ET and myloproliferative neoplasm for almost three years now. The 500mgs of..."

so true about the blood work comment. My physician likes to check the platelet count and seems to ignore the fact that I am anemic. He does routinely check my metabolic counts and iron but I get frustrated trying to tell him that I am not interested in being so tired that I cant go about my life.