Connect
← Return to They found a mass: How do you cope with anxiety and all the tests etc?
Discussion
They found a mass: How do you cope with anxiety and all the tests etc?
Lung Cancer | Last Active: Nov 25, 2022 | Replies (157)Comment receiving replies
Hello Merry,
do you have lung cancer if you don't mind me asking and for how long ? I think my doctor is on top of my type of cancer and your right other people with this kind of cancer may not cough up blood just something else I have learned. have you ever heard of PDT treatment I believe they do this at Roswell Park, done with some kind of lighting, there is so much to read online I would rather have people like you and others that have went through the same thing fill me in on it, it makes more sense to me. and I don't feel so alone.
Keep in touch
Cynde
Replies to "Hello Merry, do you have lung cancer if you don't mind me asking and for how..."
Connect
@loula- Yes, I do have lung cancer. I am the mentor for the Lung Cancer and Lung Disease groups for Connect. My first cancer was in 1997. I had a lobe removed and no treatments. Yes, I had follow-up CT scans. 10 years later my second type of cancer showed up. It's called Multifocal adenocarcinoma of the lungs. Briefly, I get primary cancers that are NCSLC in both my lungs. They are not considered metastases. The treatment for these right now is SBRT. Stereotactic Body Radiation Therapy is a specialized type of external beam radiation that allows highly precise delivery of high doses of radiation to small targets.
I have had 2 lobectomies and chemo and SBRT for treatments. I have had, including my first lung cancer 6 tumors removed. So this is a total of 23+ years.
No, I have never had PDT. Photodynamic therapy (PDT) is a treatment that involves light-sensitive medicine and a light source to destroy abnormal cells. It can be used to treat some skin and eye conditions, as well as certain types of cancer.
I know that there is a lot to read online, however, you can limit your searches using simple words. It's always great to hear from people who have experienced the same thing as you. But there is nothing like doing your own searches. I always feel that I am more powerful because it is something that I did to further understand myself, what I have and how I can adjust to things.