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@becsbuddy

Hi, Cynde. I’m glad someone else recognizes PacMan. You and @1nan have great memories! Unfortunately, the autoimmune disease is here to stay. The neurologist is just trying to find something that will put me into remission. Very few people have this so I’m a guinea pig. My older sister also has an autoimmune disease but hers doesn’t affect her brain. Steroids are part of the treatment protocol. They keep me up for 1 whole night. 😖
You are going to do fine with the chemo. Just think positive! And oncology nurses are very kind and helpful. I know because I was one!
Let me know how your infusions go! Becky

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Replies to "Hi, Cynde. I’m glad someone else recognizes PacMan. You and @1nan have great memories! Unfortunately, the..."

Hello Becky
sounds like a rare disease you have, is this something hereditary. praying for a remission drug. The oncologist told me that I am at a incurable stage but doing different drugs to keep me going for as long as they work said that this will be what takes my life at some point so heck I just think of myself as the timex watch take a licking but keep on kickin! I do take sleep aides at night so I hope that the steroids don't keep me up all night.

Stay Healthy
Cynde