@loula Cynde, I think I said it before, but I have checked in with your posts and find that you have definitely found your place here on Connect. You seem to have identified what you need and found others who understand and are along side with you. I have had about four different protocols that ran their course until they no longer helped and there was always something new to try. Did that for four years. Then came remission. Much of what has been suggested to you is similar to my own experience so I cannot improve on what you know. I will watch from the sidelines with prayers and positive vibes for you. Let me know if down the road there is anything more that I can do for you. I am so impressed with your strength. It will get you through those times you question yourself. Peace, Nancy

@loula. I’ve been having these infusions every month for 6 months. My infusions are to try to control some lesions in my brain caused by an autoimmune disease. I get 3 days of steroid infusions and 1 day of chemo infusion. The chemo takes about 5 hours. And, no, I don’t have a port. The nurses are great at starting IVs. Yes, I do get a metallic taste but it never lasts long, thank heavens.
You sound like a strong woman so I know you’ll do fine. Are you old enough to remember the Pac Man video games? PacMan (chemo) goes around eating up all the bad guys (cancer cells)! Just keep that image in your mind! Becky