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@1nan

@loula I feel like I just heard you thinking out loud, and what a healthy thing to do. The thought, “should I get scared that it is in my lymph nodes or wait......?” is totally in your control. How do you want to spend your time until next Thursday? Your choice. In our family we consider “is it time to worry?”. If we are still in control of what to do, the answer is an automatic “No!”. Consider this: In October of 2004 I was told my precursor to multiple myeloma had changed to the actual disease. But we could watch and wait until it progressed enough to need treatment. If treated then, the life expectancy was 3-5 years. My choice? Live in fear or continue life As. I. Chose? It was a wonderful 12 years in service, enjoying all the wonderful things that happen in growing families, but complying with periodic testing just to stay smart. I don’t have to tell you the benefit of my choice. You will have choices all along, just as always. Learn some coping skills and positive distractions to help yourself be and do what you want. I apologize if this came across as a “sermon”, but I do want you to know that you have the power to handle this. And you are off to a great start. With lots of support behind you. Peace, Nancy

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Replies to "@loula I feel like I just heard you thinking out loud, and what a healthy thing..."

Thank you Nancy for the advise, you have been dealing with myeloma for 12 yrs ? I also have mds it is in the red blood cell mine is called mds-rs-sld. Dr. giving me aransep injections to keep red count up. just got use to that and now another mountain to get over comes along.